Comments on: What is Anaphylactoid Purpura

By: Beth Gasser

Beth Gasser — Mon, 19 Dec 2011 19:15:14 +0000

Wow, that is quite the story! I can imagine how scare you would have been. It was scary for us too, but not quite to that level! Glad he’s doing well after all these years. My daughter’s hasn’t come back yet, fingers crossed.

By: Angie Hanson

Angie Hanson — Sun, 18 Dec 2011 23:15:01 +0000

My son was diagnosed with Anaphylactoid Purpura when he was 2 years old (year 2000) he is now 13. He started off with just not feeling well and a slight fever. The next morning I went to work to open up the Day Care that I worked at, but knowing that I was going to leave to take my son to his doctors office as soon as the first staff person came in. I left around 530 am that morning and was home by 700 am. From the time that I left the house and came back he had a rash all over his body and had a 103 temp. Well mommy radar went off and I rushed him to the ER. They got my so right into a room and all doctors and nurses were wearing mask and tell us that we also should put one on. At this point they were not telling me what was going on. Even tho we asked and they said it was just for there safety. At this point my Husband and myself was a mess.

The doctors told us that they were pretty sure that my 2 year old son has spinal meningitis and that they would have to do a spinal tap on him to make sure. Talking about my heart braking into a billion little piece. Well after doing it. The fluid came out clear, so that he did not have that.

They admitted him to the hospital because they did not know what was wrong with him.

My son was in so much pain. And no one knew why. After 2 days they told us it was Anaphylactoid Purura. And there is no treatment for it. He had so much pain in his joints and body. We spent 4 or 5 days there. After we went him he started to get better and then about 3 weeks later it came back. But not as bad.

Still to this day he has a huge mark on his leg where his blood vessels popped. A mark that will always remind us of that horrible sad day.

By: Beth Gasser

Beth Gasser — Mon, 05 Apr 2010 12:49:14 +0000

My daughter has cleared up. We’ve brought her in for checks though every month. She’s due for her last one, however, I know I’ll recognize it if I ever see it again. From what I understand, the kidneys are the most serious, but it can happen in the stomach and intestines too. We were instructed to watch for complaints of stomach aches etc. I hope your little one feels better soon and that this all passes. I’m hopeful it won’t come back, but I’ll be watching! I wish I knew more to help you…this was all new for us too.

By: Norma

Norma — Mon, 05 Apr 2010 05:32:12 +0000

My five year old daughter has been fighting HSP since Feburary 1, 2010. It seems like the swelling has stopped. Her knee at one time was the size of a baseball. Ankles, hands, elbows, eyelids have all swelled as well. Her rash has been everywhere with little ‘poc’ marks on her face and ears. Tonight I noticed bumps, unlike her rash, on her fingers. We have only done urine test to make sure her kidneys are ok. Would you recommend any other tests? Are your children healed up? She is very happy and mobile–should I still just ride it out. T appreciate your opinions! Has the skin discoloration gone away in your child? Thanks Norma

By: ConfessionsMom

ConfessionsMom — Fri, 11 Dec 2009 01:55:26 +0000

My daughter was diagnosed the end of November, and we were told it could last up to 6 months. She is going to be checked every 4 weeks for 6 months. She also has chronic asthma which tends to lead to sinus/bronchitis type issues that have apparently been linked to this anaphylactoid purpura condition. The bruising and rashes have gone away, along with the itching. But it can come back without any warning. We are watching her very closely. You have my prayers for a speedy recovery and no ongoing issues. Apparently 80% recover and never deal with it again.

By: marji

marji — Thu, 10 Dec 2009 21:41:55 +0000

I just learned today that my 5 yr old has been diagnosed with this condition today. How long did it last w/ your daughter? I was told it might last 2 more weeks, but read online that it could last up to a month. I’ve never heard of this illness before now and appreciate any insight.

Many Thanks!